Our Curse

The film is a personal statement of the director and his wife, who have to deal with a very rare and incurable disease of their newborn child – the Ondine’s Curse (also known as CCHS, congenital central hypoventilation syndrome). People affected with this disease stop breathing during sleep and require lifetime mechanical ventilation on a ventilator. The film shows the first few months of living together after the diagnosis. At the beginning, the child is still in hospital, but soon he comes home, with all his medical equipment. The film shows the process of taming the fear by the parents and gradually adapting to the new situation.