2020  ·  United States  ·  Documentary

Bad Day with Rare

STATUS: Released

Bad Day with Rare

This film is currently not available.   

The short film covers the struggles with 8 rare diseases: Okur Chung Syndrome, EB, SYNGAP1, Menkes Disease, Bosch-Boonstra-Schaaf optic atrophy syndrome, ichthyosis, ADCY5 related Dyskinesia, STXBP1