More than 500,000 children in Canada and the USA have epilepsy. About a third of those children continue to have seizures despite taking anti-seizure medications, also known as pediatric drug resistant epilepsy (DRE).
Surgery may be one option for them, but what if there is another option that is less invasive or more effective?
Seizing Hope documents the stories of four Canadian families in their journey to learn, understand, and explore the ethical trade-offs and decision-making values around modern technology for the brain. They guide us through their journey towards hope, trust, and empowerment in times of darkness for a better quality of life for their children who have DRE. By addressing gaps in knowledge and considerations that involve values, priorities, and trust, we identify critical decision-making factors surrounding neurotechnologies and the pathway to their adoption for pediatric DRE.
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